Learned so much! I felt so seen as someone with a silently (or not so silently) creeping disease (ALS). Redefining strength, self-worth based on accomplishment..
Lost my best friend in January 2020 to complications from MS. Every new study, clinical trial, approved drug or therapy elicits in me a strange, twisted swirl of joy (that so many people are gonna be helped by these treatments and research) and grief (that she missed out on them).
I heard somewhere that herpes simplex viruses were also being looked at as a potential trigger, since they reside in the nerve cells. Would be curious to know if that's an accurate claim.
Women under 50 significantly more at risk of developing multiple sclerosis than their male contemporaries. Progressive forms of the disease seem to affect more people over 50, although when I was a student nurse we had a 20 something male with the progressive form.
Learned so much! I felt so seen as someone with a silently (or not so silently) creeping disease (ALS). Redefining strength, self-worth based on accomplishment..
I just found you one Substack. I have SPMS and I am inspired by your work. I am Honored to follow you and support you. Thank you.
Great article.
Lost my best friend in January 2020 to complications from MS. Every new study, clinical trial, approved drug or therapy elicits in me a strange, twisted swirl of joy (that so many people are gonna be helped by these treatments and research) and grief (that she missed out on them).
I have had too many of my very precious friends suffer from this devastating disease. It’s also so varied in its presentation and complex to manage.
I heard somewhere that herpes simplex viruses were also being looked at as a potential trigger, since they reside in the nerve cells. Would be curious to know if that's an accurate claim.
looks like this may be the case- https://www.brighamandwomens.org/neurology/multiple-sclerosis-information
Women under 50 significantly more at risk of developing multiple sclerosis than their male contemporaries. Progressive forms of the disease seem to affect more people over 50, although when I was a student nurse we had a 20 something male with the progressive form.